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3AD3EBB91B2F008587258838005A1B2D Hearing Summary


Date May 4, 2022      
Location Old State Library

SB22-186 - Referred to House Appropriations

10:25:19 AM  
ML McKean, bill co-prime
sponsor, introduced SB22-186.  The bill creates the Rare Disease Advisory
Council (council) in the Department of Public Health and Environment to
study and make recommendations concerning the needs of individuals with
rare diseases. The council consists of 12 voting members appointed by the
chairs of the House Public and Behavioral Health and Human Services Committee,
the House Health and Insurance Committee, and the Senate Health and Human
Services Committee. The Director of the Office of Health Equity or their
designee serves as an ex officio nonvoting member. Initial appointments
will be made by October 1, 2022.
10:30:49 AM  
Representaive Mullica, bill co-prime sponsor, gave opening comments on the bill.
10:31:26 AM  

A fact sheet was handed out to the committee (Attachment B).

10:32:14 AM  
Edie Busam, on behalf
of Annissa Reed from the National Organization for Rare Disorders, testified
in support of the bill.

10:34:18 AM
Motion Refer Senate Bill 22-186 to the Committee on Appropriations.
Moved Mullica
Seconded Sirota
Froelich Excused
McCormick Yes
Mullica Yes
Ransom No
Sirota Yes
Soper Yes
Titone Yes
Will Yes
Williams No
Ortiz Yes
Lontine Yes
Final YES: 8   NO: 2   EXC: 1   ABS:  0   FINAL ACTION:  PASS

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